Blog Posts - Cystic Fibrosis



Tests, shots & ultrasounds OH MY : A pregnancy update

I have always hated the idea that in order for me to be watched more closely during pregnancy I had to lose my beautiful daughter. I’m also finding with this pregnancy that the doctors I had with Averie didn’t do nearly as much testing as...
by Living Through Our Loss on Jul 26, 2016

CF Champions Navigating the Journey Together with Cystic Fibrosis

This post was sponsored by Walgreens Cystic Fibrosis Services as part of an Influencer Activation for Influence Central. I received compensation as a thank you for my post. Have you ever heard of Cystic Fibrosis? I hadn’t heard of it until a cl...
by The Mommy-Files on Jul 20, 2016

THOUSANDS with life-threatening cystic fibrosis will miss out on ‘breakthrough’ treatment

ALMOST 3,000 people with cystic fibrosis will miss out on a ‘breakthrough’ treatment after the health watchdog turned it down for use on the NHS. Read more here: Daily Express :: Health Feed...
by Celebrity gossip news on Jun 17, 2016

Gourmet Grandeur at the Hotel Del Chef Throwdown for CFF

Top San Diego chefs and restaurants banded together in support of the Cystic Fibrosis Foundation at last night’s extravaganza. The food was incredible as was the ambiance under the stars at the iconic Hotel Del. Top honors went to supremely ...
by Wabisabi Green on Jun 10, 2016

Hotel Del Chef de Cuisine Meredith Manee Represents at The Throwdown

Chef de Cuisine Meredith Manee is the incredibly talented force behind the Hotel Del’s top notch cuisine. She is a world traveler with an adventurous spirit and even skydives! Learn more about Chef Meredith in the following interview. JP: Ar...
by Wabisabi Green on Jun 6, 2016

Chocolate Queen Ashley Drake will Compete at the Chef Throwdown

Ashley Drake recently launched her trailblazing company, The Chocolate Lush. Her delectable creations incorporate unusual flavors such as Smoked Vanilla Porter and Salted Pretzel, Bitters Spiced Orange and Caramelized Almond and Cherry and Chile. Ash...
by Wabisabi Green on Jun 2, 2016

Blue Bridge Executive Chef Tim Kolanko Brings It to the Chef Throwdown

Chef Tim Kolanko brings his venerable knowledge and mastery of cooking to the upcoming Hotel Del Chef Throwdown in support of the Cystic Fibrosis Foundation. Chef Tim is inspired by farm fresh ingredients and the love of wood fired grilling. Read o...
by Wabisabi Green on May 29, 2016

Hodson and Geddes Cystic Fibrosis 4th Edition

  Hodson and Geddes Cystic Fibrosis 4th Edition Hodson and Geddes’ Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This internationa...
by booksmedicos on Sep 5, 2015

Book review: Changing Fate by Michelle Merrill

All Kate wants is to live. Battling cystic fibrosis is hard enough, dying from it is even harder. When her mom moves them closer to the hospital in the middle of her senior year, Kate’s determined to isolate herself—saving everyone the trouble of...
by Mom Loves 2 Read on Jun 23, 2014

Bacterial food web may be key to cystic fibrosis | Cornell Chronicle

Cystic fibrosis patients suffer from chronic bacterial infections and thick mucous in their lungs, due largely to a combination of microbial infections and resulting inflammation. A common pathogen, Pseudomonas aeruginosa, which can lay dormant in he...
by PolygenicBlog on Jan 12, 2014

David s Law

Patients with cystic fibrosis are trying to pass a new fed law please help us do so by going to this site and giving us a hand we are also looking for volunteers as well if you are willing to help 612-282-1211 or email me fightcf@yahoo.com thanks aga...

Sticky Icky Booger Bugs ~ a day in the life of a little boy with Cystic Fibrosis ~ Review & Giveaway on Mom Loves 2 Read

There are 30,000 children each year diagnosed and battling cystic fibrosis. There is no cure for this progressive disease. Sticky Icky Booger Bugs is the tale of a boy's battle with cystic fibrosis as he attempts to avoid the hospital. Kory i...
by Mom Loves 2 Read on Oct 29, 2013

Cystic Fibrosis: A Trilogy of Biochemistry, Physiology, and Therapy (Subject Collection from Cold Spring Harbor Perspectives in Medicine)

Features Used Book in Good Condition Product Description Cystic fibrosis is caused by mutations in the CFTR gene, which encodes a protein channel that regulates salt movement across the epithelial membranes of the lungs, pancreas, and other organs. I...
by Enzyme Therapy on Sep 5, 2013

What you need to know about Cystic Fibrosis

Cystic Fibrosis Among many Genetic Disorder Diseases Cystic Fibrosis is also a kind of Disease causes due to genetic disorder. It was first detected in the 1930s. This disease is otherwise known as Mucoviscidosis. Its affect are majorly observed in s...
by Health Save Blog on Aug 5, 2013

Cystic Fibrosis: A Trilogy of Biochemistry, Physiology, and Therapy (Cold Spring Harbor Perspectives in Medicine)

Product Description Cystic fibrosis is caused by mutations in the CFTR gene, which encodes a protein channel that regulates salt movement across the epithelial membranes of the lungs, pancreas, and other organs. In cystic fibrosis patients, salt tran...
by Enzyme Therapy on Jul 7, 2013

Cystic Fibrosis: A Trilogy of Biochemistry, Physiology, and Therapy

Product Description Cystic fibrosis is caused by mutations in the CFTR gene, which encodes a protein channel that regulates salt movement across the epithelial membranes of the lungs, pancreas, and other organs. In cystic fibrosis patients, salt tran...
by Enzyme Therapy on Jun 27, 2013

Haley’s Team: Running Towards A Cure 2013 Edition

On Saturday night many turned out for a great cause.  Haley’s Team: Running Towards A Cure is a run to raise money for Cystic Fibrosis research at UAB in Birmingham.  Many people participated in the run through the Fort McClellan area of …...
by Geek Alabama on Jun 23, 2013

Self feeding

We’ve been following up with the feeding and swallowing clinic twice a week since graduation. Nothing changed last week – 2.5 oz puree, 1 oz mashed, and .5 oz chewable, 4 meals a day followed by 2 oz 1.5 cal pediasure and enzymes. The enz...
by Nathan's Fight on Feb 19, 2013

Genesis Research Trust.

In September 2013 a group of women, will trek for 5 gruelling days to the peak of Machu Picchu to raise much needed funds for The Genesis Research Trust.   The charity is The Genesis Research Trust and Tracy is aiming to raise £3500 Tracy can a...
by Always Be A Friend on Feb 10, 2013

New website to unite cystic fibrosis patients and researchers

People with cystic fibrosis (CF) will be able to access the latest research findings about their condition, volunteer for clinical trials and influence the direction of future scientific studies through a new website being launched later this week.&n...
by PolygenicBlog on Jan 9, 2013


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