This is the story of my precious little daughter, Louise, who was diagnosed in the womb with a major heart defect and Dandy-Walker brain malformation and subsequently diagnosed with PHACE Syndrome. It is a tale of hope, tears and joy.
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Jennifer_Kehoe
Listed in: Personal
Language: English
Tags: Dandy-Walker, Phace Syndrome, Congenital Heart Disease, Tricuspid Atresia, Hope
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Latest Blog Posts for Little Louise
- Louise’s Blog Has Movedon May 5, 2012 in UncategorizedI’ve been a bit concerned for quite some time that something may happen this website and Louise’s story would be lost considering that nobody else seems to blog with this host. I do have a soft spot for blog.com and for this template (...
- Planning Lifelong Careon Feb 27, 2012 in UncategorizedHere’s an interesting video I came across on YouTube. It hits home that it’s not necessarily going to be all plain sailing for the future. Thank God for doctors and scientists like these guys and a little reminder to pray for (and fun...
- Shoot Those Tiny Arrows.on Jan 23, 2012 in UncategorizedToday we had Louise’s regular cardiac check-up. John came along with me because I wanted him to be there as we needed to try and pin down a definite plan for having Louise’s brain MRA done which would include the heart MRI. The doctor w...
- Raindrops On My Headon Oct 21, 2011 in UncategorizedThis is a quick little post to announce my new blog. Even though this blog cost me many many tears, I really enjoyed writing it . I considered gradually introducing other topics apart from Louise, as you can see from the last post, but it really is a...
- The Moon & The Stars and A Planet Made of Diamond.on Sep 3, 2011 in UncategorizedWhen I was a little girl most people didn’t have telephones in their house and we certainly didn’t. So there were telephone boxes dotted in convenient locations and that’s where people went to ring their relatives, friends and the o...
- Put Your Money Where Your Feet Are…on Aug 29, 2011 in UncategorizedWhen Louise was 10 days old she went into heart failure, that is, she started dying. By having been blessed to have been born into the First World, she was admitted immediately to hospital and operated on a few days later. If she had been born into t...
- Well, According To My Research…on Aug 24, 2011 in UncategorizedYesterday afternoon we had Louise’s appointment in the National Centre For Medical Genetics which is based in Our Lady’s hospital, Crumlin (imagine,all these things that are going on in the country that you never know about, interesting.)...
- Something I Want To Sayon Aug 22, 2011 in UncategorizedToday I read a post on a Dandy-Walker forum by a sibling of a young man who lives with Dandy-Walker asking parents to consider abortion more seriously as the way to go after getting an in-utero diagnosis. She defended the position that practically al...
- A New ‘PHACE’on Jul 6, 2011 in UncategorizedOk ok, I’m the first to admit it, I’ve been neglectful in keeping my blog up to date. Part of the reason is my ever extending long finger but the other part of the reason has been my belief that we were home and dry and that Louise’...
- Happy Birthday, Little Treasureon Mar 21, 2011 in UncategorizedWhat a difference a year makes. Oh, what a cliche, but oh, how so very true. I somehow seem to have been propelled at high speed into the future and arrived here a year later with a little one year old treasure who has added so much to my life, (whil...
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