10/29/09 Mattie update
on Oct 29, 2009 in Uncategorized klippel feil mattie mitochondrial myopathy shoffner Surgery I don’t have a lot of new information. I will update everything as I know more. Mattie will be going in for a resting metabolic rate test on November 18th and then meeting up with Dr. Shoffner (the molecular geneticist). The following day we wi...

Mattie update 10/09
on Oct 26, 2009 in Uncategorized asthma genetics klippel feil mattie medical mitochondrial myopathy shriners This is an update from Mattie’s care page. I am thinking about moving everything over to my blog. Many of you have told me that you don’t like having to log in to read the updates on Care Pages. Let me know what you think. Thank you to m...

Walk 4 Hearing
on Oct 8, 2009 in Uncategorized 5k augusta cochlear donation Enlarged Vestibular Aquaduct syndrome fundraising GA hearing aid hearing implant hearing loss HLAA klippel feil martinez mattie walk walk4hearing This Saturday our family will be participating in the Walk4hearing in Martinez Georgia. Walk4Hearing™ events are fundraising 5K (3.2 miles) walks to be held in over 20 locations across the United States in 2009. Since its formation in 2006, Walk4He...

Thursday 13
on Aug 7, 2009 in Uncategorized favorites movies Thursday 13 Thursday Thirteen okay…. it’s Friday… but it has been a really long day. Thirteen Movies I Like 1. Fiddler on the Roof 2. As Good as it Gets 3. Anna and the King 4. Schindler’s List 5. Seven 6. Shawshank Redemption 7. The Green Mile 8. The Prin...

Thursday Thirteen
on Jul 30, 2009 in Uncategorized Thirteen things I need to be better about doing. 1. Quiet time. I pray, but need to be better about spending time in God’s word. 2. Planning out our meals. I seem to be putting together a lot of our meals out of what I find in the pantry last m...

The “S” Word
on Jul 29, 2009 in Uncategorized okay… so my rock recently got chipped. Today James was playing around singing nonsense words (trying to merge the words shush and quiet) and belted out sh*t at the top of his lungs.  Completely caught off guard, I reacted poorly. It isn’...

Wordless Wednesday
on Jul 29, 2009 in Uncategorized BAHA fusion hearing implant klippel Feil Syndrome mattie spine wordless wednesday x-ray ...

Back 2 School
on Jul 20, 2009 in Uncategorized Alyssa back to school Elluminate field trips GVA homeschooling James k12 library mattie piano Schedule School Virtual education We are going to slowly crawl back into school over the next couple of weeks. I am having the kids do one or two subjects a day. I don’t want to overwhelm them or rob them of the end of the summer… but I am so ready to get back into a sche...

Wordless Wednesday
on Jul 16, 2009 in Uncategorized James kids meme wordless wednesday ...

Thursday 13
on Jul 16, 2009 in Uncategorized curriculum homeschooling socialization teacher Thursday 13 Thursday Thirteen Virtual education 13 things I like about virtual school. 1. It is all put together for me. ( I am hugely unorganized) 2. The cost. (you can’t beat free, and it allows me to supplement) 3. Accountability(I like knowing that we are being checked up on) 4. I love a...