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I am a stay at home mother of 2 boys that have a rare disease referred to as Retinitis Pigmentosa. There is no cure for this disease. The end is blindness.

Owner: mariann18

Listed in: Health

Language: English

Tags: Retinitis Pigmentosa, stay at home mom

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Latest Blog Posts for Stay at home mom

  • Another Day
    on Jul 14, 2009 in Tuesday
    Well, It's Tuesday. Just another day. I'm getting ready to take Colton for swimming lessons. He absolutely loves it. He is becoming a great swimmer.Aidan is still in bed, so I thought I had better jump on here and get my thoughts down before he gets...
  • Special Sunglasses
    on Jul 13, 2009 in Sunglasses
    With this disease you need to take precautions. There is no cure, but there are things that can actually make it progress quicker. One of these things is exposure to the sunlight. Now tell me what kid that doesn't like being outside on a sunny day. M...
  • Frustrated
    on Jul 13, 2009 in GRRRRRR................
    I know this blog is suppose to be about my boys having RP and how we deal with it, but I'm going to mix it up a little. In a way I'm still incorporating that into this. I don't think that I mentioned that I have a husband. Well, it's probably for the...
  • What a Challenge..
    on Jul 12, 2009
    This disease can be VERY challenging at times. My boys are troopers though. I don't think Colton really knew what was going on with his eyes until the one day when I was on the phone, I was pretty sure that he couldn't hear me when I was talking with...
  • Aidan
    on Jul 11, 2009 in My boys
    When I found out that Colton had RP I was terrified. He was 6 at that time. That's what made me get Aidan checked. I decided that that day was going to be shortly after he turned 3. I took him to the Eye Doctors in December of 2008. I sat and waited...
  • Day by Day
    on Jul 10, 2009 in Colton
    No one wants to hear words of "Your sons have RP" Your first thoughts are "What is that?" Well it is a disease that attacks the photo-receptors in the eyes. Both of my precious boys have this horrible disease and whats worse "I cant do one thing abo...
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