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The medical journey of our family. My husband was born with aortic stenosis. My son was born with a bicuspid aortic valve. My daughter was born with hypoplastic left heart syndrome.

Owner: KidParties

Listed in: Personal

Language: English

Tags: family, congenital heart defect, hypoplastic left heart syndrome, bicuspid aortic valve, unicuspid aortic valve

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Latest Blog Posts for The Heart of Our Family

  • It's a Boy!
    on Jul 30, 2011
    Baby #5 is now 2 months old.I haven't blogged for a while because, well, I was pregnant and miserable and not doing much of anything. But, we made it through. The kids were having a difficult time, fighting all the time as I waited for the baby to co...
  • Fetal EchoWe had the fetal echo for baby #5 this week.The baby's heart looks as perfect as it can while trying to peer through belly fat and the heart is only the size of a dime.Still, it looks good.The tech who did the fetal echo ran through the usual list of...
  • New Hope
    on Jan 14, 2011
    Here she is at her birthday party.Our darling angel has classes every Friday with other homeschooled kids. She absolutely loves her Friday classes.However, they also cause her an extreme amount of anxiety. Her big brother walks her to classes and pic...
  • Baby Steps
    on Jan 14, 2011
    Okay, so this morning was really good, but it wasn't meant to last forever.This afternoon she had a complete meltdown because her friend couldn't play.C'est la vie.
  • You've Had a Birthday, Shout Hooray!
    on Dec 30, 2010
    Each year for my children's birthday I write them a letter.Here's the letter I wrote this morning for my favorite red head:You’re turning 8 tomorrow! That’s a day I was never certain if it would come.You have certainly spent more than your share...
  • I Might Whine Too Much...But Here Goes
    on Dec 13, 2010
    I homeschool a special needs child. Sometimes I just want one day without any frustration--either from my child or from me. Good luck.Learning to read has been a huge challenge for her. Most things that seem like only one or two steps to the rest of...
  • She's Almost Eight!
    on Oct 18, 2010
    A birthday is coming. An eighth birthday. And, for us that means baptism.So Grandma and I took her shopping for a baptism dress. This is the one she selected.Her first choice was tight around her bodice and uncomfortable. This was her second choice,...
  • Self-Realization
    on Oct 2, 2010
    My darling daughter had a bit of a self-realization last night.She said to me, “It seems like things are getting harder. It used to be easy but now it’s getting harder.”Her explanation was that she used to never wet her bed, now she does s...
  • Baby #5 Is on the Way
    on Sep 24, 2010
    Yes, we're crazy.Anyone would think we're crazy to want five children.Everyone probably thinks we're insane to have any children after the first two have congenital heart defects. I read a statistic that we only had a 30% chance of having more t...
  • My Soap Box and My Hope
    on Aug 22, 2010
    Saturday we watched Clash of the Titans. A great adventure movie with Zeus and Hades vying for the adoration and fear of man.Sunday School the lesson is about Job. A great poetical work about God and Satan debating man’s devotion to God.Both of the...
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