The road to a heart transplant is a long one. Most people don't know all that's required just to be put on the list for a transplant. Follow my families journey through this long road.

Owner: LongRoad

Listed in: Personal

Language: English

Tags: heart transplant, diary, health, struggle, family

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Latest Blog Posts for The Long Road Ahead

  • The Call We've Been Waiting For! got the call he's been waiting for at 12:05 yesterday afternoon.We immediately got busy getting ready to head to Stanford.We got here around 2:30PM.  Then the waiting began.  Finally got him into a bed around 9 PM.  Then more w...
  • 1 year on the list
    on Dec 3, 2011 in day to day life sleep apnea
    Today marks 1 year on the list waiting for a new heart.In some ways this year has flown by and in others its been a very long year.Sometimes I wish the call would come right away, and others I'm not ready for it.  My one worry is the call coming...
  • Fundraising Totals
    on Nov 5, 2011 in fundraisers
    The Super Mex fundraiser in Lakewood CA brought in just under $500.The IHOP fundraiser in Capitola, CA brought in around $200.The totals aren't as much as we had hoped, but every little bit helps.The kids and I came up with another fundraiser to do i...
  • Another Super Mex Fundraiser
    on Oct 15, 2011 in fundraisers
    There is another fundraiser for Patrick at Super Mex in Lakewood, CA.  20% of sales (WITH FLYER) will go towards Patrick's medical bills. Tuesday October, 2510:30AM - 9:00PM5254 Faculty AveLakewood, CA  90712(near the mall)Click on the flye...
  • IHOP Fundraiser
    on Oct 10, 2011 in fundraisers
    Thanks to Gil and Marsha, some awesome friends of ours, who set up a fundraiser at IHOP.November 3rd from 7 AM to 10 PM the local IHOP will donate a percentage of all the days sales to help with Patrick's medical expenses.  No tickets, coupons,...
  • 300 Days
    on Sep 29, 2011 in the long road
    Wow.  Its been 300 days since we got the phone call saying that he's been listed at Status 2. You'd think after this many days I'd be able to relax a little, but nope.  Every time the phone rings and its an unknown number my heart jump...
  • Its not just about him
    on Sep 28, 2011 in day to day life randomness
    Everyone is always concerned with how Patrick is doing.  Of course they are, I mean he is waiting for a heart transplant.  People also ask how the kids are coping with it all.  I get it.  They are kids having to cope with their da...
  • The California International Air Show
    on Sep 27, 2011 in day to day life pictures randomness
    Sunday we went to the Caliornia International Air Show.  The kids entered into the Just Plane Fun run.  They were excited because they actually got to run out on one of the runways.  For kids 10 and under it was a half mile, for 11 and...
  • Why we have to fundraise
    on Sep 26, 2011 in fundraisers NTAF the long road
    I've had a few people ask why we need the fundraisers if we have insurance.When I tell them that there is still so much that insurance doesn't cover, they look at me like I'm crazy.  I admit I would have been one of those people.  Before I...
  • Nick News: "A Gift of Life"
    on Sep 19, 2011 in videos organ donation donate life
    The donation of organs is one of the most amazing achievements in modern medicine. With more than 2,000 kids in the U.S. waiting for organ donation, it's also very important.Get More: Nick News Episodes,Nick News,Nick News Games...
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