Articles, stories, and tips about living with Becker muscular dystrophy with topics about life, travel, wheelchair use, and more.

Owner: dannod

Listed in: Health

Language: English

Tags: muscular dystrophy, disability, wheelchair, disabled, inspirational

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Latest Blog Posts for Life with Muscular Dystrophy

  • Don’t think about it so much
    on Nov 5, 2013 in Everyday Life Helpful Tips
    There is a fine line between being prepared and over-thinking something. Dealing with a disability often requires advance preparation. However, preparing for the worst can often change into expecting the worst. When this happens, you miss out on a lo...
  • It’s BMD Awareness Week!
    on Oct 9, 2013 in Helpful Tips
    We are in the midst of Becker Muscular Dystrophy Awareness Week! Please checkout the BMD Awareness Week Facebook page and learn about the disorder or share your story! There are many people with BMD connecting on Facebook so please use … Contin...
  • A book about FSH MD
    on Oct 9, 2013 in Recommended Reading
    Since we can all relate to neuromuscular disease experiences, let me share with you a new book about living with FSH MD called, “The Graceful Art of Falling” by L. White. You can also check out the accompanying Facebook page … Conti...
  • London in a Power Wheelchair
    on Oct 7, 2013 in Travel
    I recently had an amazing time in London despite traveling with an electric wheelchair AND having a few drama-filled incidents. I learned a few things and wanted to share them with people in chairs who might want to travel there. … Continue rea...
  • Awesome surfer with muscular dystrophy
    on May 12, 2013 in Motivational
    Love it when people share these things with me — a great short film about Ryan Levinson, a surfer with a form of muscular dystrophy. I can’t say much more about it so just watch the film! The Present Moment … Continue reading →...
  • What is disability discrimination if not this…
    on Jan 25, 2013 in Issues & Opinions
    I have been researching some possible vacation ideas, specifically cruises in the British Isles. One of the cruise lines, Windstar, talks about accessibility on their cruises, which can be found here. Windstar does not discriminate against persons on...
  • Pay attention to what makes you uncomfortable
    on Oct 10, 2012 in Everyday Life
    There are many things that make me physically uncomfortable — wearing wet jeans, sitting on a crease in my pants, sleeping on one side for too long — just to name a few. But there are also a bunch of … Continue reading →...
  • I think I get better customer service
    on Sep 24, 2012 in Everyday Life
    I hear people complaining about customer service all the time. I’d have to say that RARELY am I met with such ridiculous stories. I know it happens. Maybe I’m just lucky. When I go grocery shopping the cashiers are usually … Continu...
  • Back to swimming
    on Sep 21, 2012 in Health
    A few years ago I was going to aquatherapy quite a bit. I loved it — exercising in the water and then doing some swimming afterwards. After seeing some of the Paralympic swimming online a few weeks ago I decided … Continue reading →...
  • Feeling overwhelmed by muscular dystrophy
    on Sep 18, 2012 in General
    I haven’t put out many posts in the last weeks and tried to think about why. Curiously, I have been doing/hearing a lot about muscular dystrophy in the last few months so you’d think I’d have lots to write about. … Continue re...
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