health blog about Ehlers-danlos syndrome, POTS, celiac, osteoporosis, malnutrition, and other supporting health issues

Owner: erickamcc0523

Listed in: Health

Language: English

Tags: Ehlers-danlos syndrom, Postural Orthostatic Tachycardia, Celiac, chronic pain, nausea

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Latest Blog Posts for untited

  • Ch-ch-changes
    on Feb 2, 2011
    I quit smoking. 2 months ago, actually. I can't get over the fact just how much better I feel, and how tight and horrible that smoking actually made my lungs feel. I suppose that until I gave it up I couldn't see how sick it was making me.I'm now...
  • Fighting against the cure (or what's the point?)
    on Jan 24, 2011
    In the history of ribbon-wearing, awareness raising campaigns for diseases, how many have been cured? How many have even brought forth one or two new drugs (completely new drugs, not just another one of a similar chemical property to those already o...
  • PAIN!!!!
    on Jan 20, 2011
    Walking silently today has been nearly impossible and completely terrible. With each step, my ankles slid out of place just enough to slam back in place, causing them to pop. With each step, I sounded more and more like a bowl of Rice Crispies. As...
  • 28 questions about my invisible illness
    on Jan 10, 2011
    I actually did this last year, but since it's been such an eventful year, with a few new diagnoses and other changes, I thought I would make it better fit with where I am now.1. The illness(es) I live with is/are: Classical Ehlers-danlos syndrome, Po...
  • Conflict
    on Jan 10, 2011
    I hate conflict. I really do. Some of my worst memories growing up involve heated "discussions" (yeah right!) that my parents had with each other, with terms being tossed that I am equal parts impressed and horrified that they knew. Watching video...
  • Happy anniversary
    on Jan 8, 2011 in POTS grief
    I guess. I don't feel like writing that much today, but I would like to recognize that a year ago on this date, I was finally given a name that, at least in part, helped to explain all of the craziness that has been going in my body for my whole lif...
  • Snow and pain
    on Jan 6, 2011 in suffering prayer grief love God pain anger
    I love snow, I really do. I think it is beautiful, and I love how falling snow covers the whole earth in silence (but I'm a very big fan of silence). I could write odes upon odes to snow and still not cover my love for it.However, I am NOT a fan of...
  • Them bones, them bones, them thin bonesMy bones are confused. Or very lazy. I don't know. They are like a 70 year old's bones, lack of calcium and all. Perhaps that is why I have had bone pain for so long. Maybe that is why my neck and back are hurting like crazy all of the time. In...
  • Christ is Born!
    on Dec 25, 2010
    Glorify Him!  May everyone have a very blessed and a very merry Christmas.
  • Missing life
    on Dec 19, 2010 in death suffering gift God
    One of the effects of living in a body that is breaking down well before its time is that I am very, very aware of my own mortality and the fact that my life is extremely finite. I know that my days are numbered, and that even if I were to live an a...
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