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After a lifetime plagued with chronic pain and a variety of seemingly unrelated symptoms, I was finally diagnosed with Eherls Danlos Syndrome and all the pieces to the puzzle began to fall into place.

Owner: JetteSetLiving

Listed in: Health

Language: English

Tags: Ehlers Danlos, invisible illness, Chronic Pain, fibromyalgia

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Latest Blog Posts for Jette Set Living - Life With EDS

  • A Trip Down Memory Lane
    on Sep 28, 2011
    As is often the case, I went to bed early only to find myself awake again shortly after midnight, and unable to fall back asleep. I hopped on the internet to alleviate my boredom and started feeling nostalgic, so I thought I would share some memories...
  • Anyone Get The License On That Mack Truck?
    on Aug 17, 2011
    I feel like I've been run over by a Mack truck, and I think it backed over me again for good measure! Since my shopping trip this weekend left me without too much residual misery, I thought I would try my hand at cooking this week.I really enjoy cook...
  • Post Surgery Activity
    on Aug 13, 2011
    I went out and did something for the first time since my Pelvic Organ Prolapse surgery on July 26th. Nothing major, a bit of grocery shopping at the Super Walmart. My little sis came with me to carry the groceries, since I am not supposed to lift any...
  • Post Surgery Pain - Need Advice
    on Aug 9, 2011
    I am in need of some advice. I am unsure whether I should call and make an early appointment with my doctor after my surgery on July 26th. I am not due to follow up for 4 more weeks, but I am having what seems to be an increase in pain at the surgery...
  • Reaching a Breaking Point
    on Aug 5, 2011
    I am an emotional wreck. Hell, I am a physical wreck too, which makes today’s emotional blow all that much more traumatic for me. I just had surgery last week, and the recovery has amplified my already pain-riddled life tenfold. Then a letter came...
  • Cautiously Optimistic About New Doctor
    on Jun 10, 2011
    For the last two and a half years I have been seeing a doctor I really like, for the first time in my life. I don't have insurance, but was able to see her through a low-income program in my county. I don't care much for the office she works in... I...
  • Fun Blog Game!
    on Jun 9, 2011
    One of my fellow EDSers, Amy, posted a blog today that was a lot of fun. She shared a website (http://www.wordle.net) that creates an Word Cloud (image) of all the common words in a document or blog, making the most common words larger and arranging...
  • Pelvic Organ Prolapse
    on Apr 27, 2011
    For the last two years I have been suffering from pelvic organ prolapse which has been getting progressively worse. I have no health insurance, so I have been on the waiting list to see the Uro-Gyn specialist at my local hospital through their charit...
  • Asperger - Sensory Overload
    on Apr 16, 2011
    In addition to my various medical ailments, I also suffer from some mental health issues. I have been diagnosed with Bipolar and Borderline Personality Disorders, and highly suspect that I also meet the qualifications for Asperger Syndrome, a high-fu...
  • Aspergers - Sensory Overload
    on Apr 16, 2011
    In addition to my various medical ailments, I also suffer from some mental health issues. I have been diagnosed with Bipolar and Borderline Personality Disorders, and highly suspect that I also meet the qualifications for Asperger Syndrome, a high-fu...
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