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Personal account of life with polycythemia vera an uncommon and hard to find out about blood disorder.

Owner: Habkirk66

Listed in: Health

Language: English

Tags: blood disorder, polycythemia vera

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Latest Blog Posts for The Polycythemia Vera Blog

  • Long time no Blog
    on Jul 22, 2011
    I've been waiting and waiting to have something definitive and something interesting to say here. I should have written 2 months ago when my blood was still 'perfect'. It is no longer perfect and my now team of 4 physicians (GP, GI, Hematology and In...
  • Swallow the Chocolate Camera Day
    on Feb 28, 2011
    Health blog Today was my much awaited gastroscopy appointment. Good news, I do not have an ulcer or esophageal varices!  I will still need meds to control the GI symptoms I get from my other medications but that is not a big deal. I am very happ...
  • Great Blood Results!
    on Jan 29, 2011
    Got my CBC results on Thursday and was ecstatic to see that my blood is perfect! The phlebotomy did the trick! This means I get to stay on this chemo dose. I have been having several mouth sores but they don't last too long and they aren't as bad as...
  • Phlebotomy Day!
    on Jan 12, 2011
    Today I had an appointment with the vampires at VGH for a phlebotomy (not a lobotomy as my GP enquired earlier in the week - as in "when are you going for your next lobotomy??" I think when it comes to a lobotomy its a one shot deal). Anyway, pr...
  • Truth in Advertising
    on Dec 31, 2010
    It turns out that the Salus company in Germany is absolutely correct when it says on the box of their product "Floradix", a liquid iron supplement, that it does indeed promote the production of red blood cells! It is also effective in bringing up you...
  • Post Christmas Update
    on Dec 30, 2010
    Its been a while! Lots to report on. We survived Christmas which was a quiet one just the 5 of us spending the day eating and assembling toys. Julien was the cutest with his constant jumping and spinning around and screaming "Its going to be awesome!
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