Phace Syndrome Blogs


This is the story of my precious little daughter, Louise, who was diagnosed in the womb with a major.. heart defect and Dandy-Walker brain malformation and subsequently diagnosed with PHACE Syndrome. It.. is a tale of hope, tears and joy.

Owner: Jennifer_Kehoe

Listed in: Personal

Other Tags: Dandy-Walker, Congenital Heart Disease, Tricuspid Atresia, Hope

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